Comments on: The Cleft — 6 months and counting http://misheru.com/2006/12/the-cleft-6-months-and-counting/ Ninja-geek-pirate-mom-friend Fri, 18 May 2012 21:35:01 +0000 hourly 1 http://wordpress.org/?v=3.0.1 By: Me Missy http://misheru.com/2006/12/the-cleft-6-months-and-counting/comment-page-1/#comment-48441 Me Missy Sat, 02 Jul 2011 17:10:05 +0000 http://misheru.com/archives/2006/12/12/the-cleft-6-months-and-counting/#comment-48441 I do -- go to the photos link at the top, or check out some of my more recent postings. She has a small scar but most people think it's a cat scratch. We haven't run into any issues with teasing, etc., during preschool -- kids just don't notice it. We shopped around for the best surgeon we could find and ended up driving about 120 miles away to use Dr. Stephen Beals in Phoenix, AZ. People come from all over the country for his skills as a pediatric surgeon, and he does a cleft correction surgery about once a week. I cannot recommend more highly that you hand-pick a surgeon. We were 'issued' a surgeon through the state of Arizona, and he was VERY put out that we went elsewhere, but he only did a pediatric facial correction surgery once a YEAR versus once a week. NOT ALL SURGEONS ARE EQUAL. Some acquaintances of ours opted to go with the state-issued surgeon and the surgery had to be redone twice because the stitches were not done well enough. So again, shop around, don't be shy, it's your baby. And good luck! I do — go to the photos link at the top, or check out some of my more recent postings. She has a small scar but most people think it’s a cat scratch. We haven’t run into any issues with teasing, etc., during preschool — kids just don’t notice it. We shopped around for the best surgeon we could find and ended up driving about 120 miles away to use Dr. Stephen Beals in Phoenix, AZ. People come from all over the country for his skills as a pediatric surgeon, and he does a cleft correction surgery about once a week. I cannot recommend more highly that you hand-pick a surgeon. We were ‘issued’ a surgeon through the state of Arizona, and he was VERY put out that we went elsewhere, but he only did a pediatric facial correction surgery once a YEAR versus once a week. NOT ALL SURGEONS ARE EQUAL. Some acquaintances of ours opted to go with the state-issued surgeon and the surgery had to be redone twice because the stitches were not done well enough. So again, shop around, don’t be shy, it’s your baby. And good luck!

]]> By: mel http://misheru.com/2006/12/the-cleft-6-months-and-counting/comment-page-1/#comment-48439 mel Thu, 30 Jun 2011 08:57:44 +0000 http://misheru.com/archives/2006/12/12/the-cleft-6-months-and-counting/#comment-48439 Like some people above, my babies cleft lip has been identified in a 3D ultrasound.Thank you for posting this blog cause just like you - I got home from the hospital and started searching for information untl my next scan - the wait will kill me! I'm hoping it will be likw Mya's, but will have to wait and see. Do you have any pictures of her grown up now 5 yrs on? I am a teacher, and naturally I'm concerned about how my child will be at school age. Like some people above, my babies cleft lip has been identified in a 3D ultrasound.Thank you for posting this blog cause just like you – I got home from the hospital and started searching for information untl my next scan – the wait will kill me! I’m hoping it will be likw Mya’s, but will have to wait and see.
Do you have any pictures of her grown up now 5 yrs on? I am a teacher, and naturally I’m concerned about how my child will be at school age.

]]> By: JFord http://misheru.com/2006/12/the-cleft-6-months-and-counting/comment-page-1/#comment-21810 JFord Sat, 12 Jan 2008 21:28:10 +0000 http://misheru.com/archives/2006/12/12/the-cleft-6-months-and-counting/#comment-21810 hi, i left a previous post when i was pregnant and just found out about our daughters cleft. you site was the first site i found and gave me hope because the ultrasound pictures were similar. feel free to check out my daughter as she is able to go in for her second lip repair at 6 months old on jan 24th. carepages.com (babyford) hi, i left a previous post when i was pregnant and just found out about our daughters cleft. you site was the first site i found and gave me hope because the ultrasound pictures were similar. feel free to check out my daughter as she is able to go in for her second lip repair at 6 months old on jan 24th. carepages.com (babyford)

]]> By: Mandy http://misheru.com/2006/12/the-cleft-6-months-and-counting/comment-page-1/#comment-13106 Mandy Mon, 18 Jun 2007 19:57:55 +0000 http://misheru.com/archives/2006/12/12/the-cleft-6-months-and-counting/#comment-13106 Wow, your little girl looks so adorable in all of the pictures. I don't even see a scar on her post-op picture and to be honest, I would never have thought she'd had a cleft lip. I'm 5 months pregnant now with my 2nd child and I'm scared to death. I was taking xanax's for anxiety for the first 6 weeks of my pregnancy before I knew and I was looking on the internet at risks caused by taking xanax while pregnant and the most common is cleft lip, but like you said, when searching for pictures I could only find the worst case scenarios and it scared me to death. I was searching for 3-D ultrasounds on google and seen the pic of your daughter. I'm so relieved to see that there is a case out there where the child had a minor cleft and it was so beautifully corrected with surgery. I'm going on the 25th to the Prenatal Diagnostic Care Center to get a 3-D ultrasound and check on the baby. I'm really scared but I'm going to try and be strong. Thanks for posting these pics and giving others hope. God bless you and your sweet baby girl and your family. ~Mandy Wow, your little girl looks so adorable in all of the pictures. I don’t even see a scar on her post-op picture and to be honest, I would never have thought she’d had a cleft lip. I’m 5 months pregnant now with my 2nd child and I’m scared to death. I was taking xanax’s for anxiety for the first 6 weeks of my pregnancy before I knew and I was looking on the internet at risks caused by taking xanax while pregnant and the most common is cleft lip, but like you said, when searching for pictures I could only find the worst case scenarios and it scared me to death. I was searching for 3-D ultrasounds on google and seen the pic of your daughter. I’m so relieved to see that there is a case out there where the child had a minor cleft and it was so beautifully corrected with surgery. I’m going on the 25th to the Prenatal Diagnostic Care Center to get a 3-D ultrasound and check on the baby. I’m really scared but I’m going to try and be strong. Thanks for posting these pics and giving others hope. God bless you and your sweet baby girl and your family.

~Mandy

]]> By: Erika http://misheru.com/2006/12/the-cleft-6-months-and-counting/comment-page-1/#comment-12008 Erika Fri, 25 May 2007 05:44:04 +0000 http://misheru.com/archives/2006/12/12/the-cleft-6-months-and-counting/#comment-12008 Thank you for posting the ultrasound picture of Maya. My first son, Jimmy (now 18 months), was born with a unilateral cleft lip and partial cleft palate but his was not caught in the ultrasound so it was a surprise at birth. I am pregnant with baby #2 and I have my big ultrasound tomorrow and am completely nervous for it. I have been searching the internet for ultrasound pictures of clefts and have not had very much luck. It's informative to see clefts that aren't as severe (Jimmy's was very similar to Maya's) and it was especially helpful for me to see the ultrasound picture of a minor cleft. I hope that if this baby does have a cleft it is as minor as Jimmy's and Maya's. Maya is so adorable! Thanks again for the pictures. Thank you for posting the ultrasound picture of Maya. My first son, Jimmy (now 18 months), was born with a unilateral cleft lip and partial cleft palate but his was not caught in the ultrasound so it was a surprise at birth. I am pregnant with baby #2 and I have my big ultrasound tomorrow and am completely nervous for it. I have been searching the internet for ultrasound pictures of clefts and have not had very much luck. It’s informative to see clefts that aren’t as severe (Jimmy’s was very similar to Maya’s) and it was especially helpful for me to see the ultrasound picture of a minor cleft. I hope that if this baby does have a cleft it is as minor as Jimmy’s and Maya’s. Maya is so adorable! Thanks again for the pictures.

]]> By: J Ford http://misheru.com/2006/12/the-cleft-6-months-and-counting/comment-page-1/#comment-11871 J Ford Tue, 22 May 2007 04:25:58 +0000 http://misheru.com/archives/2006/12/12/the-cleft-6-months-and-counting/#comment-11871 thank you for your website. i am 30 weeks pregnant with my second child and had a 4d ultrasound done the other day just for fun and found out my baby has a possible cleft lip and/or palate. im waiting to see a high risk clinic for a better ultrasound diagnosis and the wait is killing me. i have found much support in the Cleft Advocate support group online and i had saved your website along with others just for the pictures to show my husband possibilities. and then today i finally read what was on your website and it helped a lot. from my ultrasound pics i think/i hope my baby's cleft is a lot like your sweet baby girl's. thanks so much for sharing. thank you for your website. i am 30 weeks pregnant with my second child and had a 4d ultrasound done the other day just for fun and found out my baby has a possible cleft lip and/or palate. im waiting to see a high risk clinic for a better ultrasound diagnosis and the wait is killing me. i have found much support in the Cleft Advocate support group online and i had saved your website along with others just for the pictures to show my husband possibilities. and then today i finally read what was on your website and it helped a lot. from my ultrasound pics i think/i hope my baby’s cleft is a lot like your sweet baby girl’s. thanks so much for sharing.

]]> By: Melissa http://misheru.com/2006/12/the-cleft-6-months-and-counting/comment-page-1/#comment-11865 Melissa Tue, 22 May 2007 02:44:41 +0000 http://misheru.com/archives/2006/12/12/the-cleft-6-months-and-counting/#comment-11865 Thank you so much for posting pictures of your beautiful little girl! I have twin sons that were born May 4. Adam has a cleft lip. It's very mild and lots of people don't notice it. I don't know if they will even do surgery on it but we'll have a consultation in a month or so. But as you said in your story....all the pictures I see and stories I hear are of the babies that have bad cases. I love seeing pictures of your little girl and I don't see a scar either. :-) Thank you. This site has truly helped me. Thank you so much for posting pictures of your beautiful little girl! I have twin sons that were born May 4. Adam has a cleft lip. It’s very mild and lots of people don’t notice it. I don’t know if they will even do surgery on it but we’ll have a consultation in a month or so.

But as you said in your story….all the pictures I see and stories I hear are of the babies that have bad cases. I love seeing pictures of your little girl and I don’t see a scar either. :-)

Thank you. This site has truly helped me.

]]> By: Fizza http://misheru.com/2006/12/the-cleft-6-months-and-counting/comment-page-1/#comment-11254 Fizza Fri, 04 May 2007 16:21:37 +0000 http://misheru.com/archives/2006/12/12/the-cleft-6-months-and-counting/#comment-11254 Hi, Like you have said, I stumbled on this website by searching pictures for cleft lip. My daughter has a cleft lip, and is having her surgery on May 18. I am getting worried about it more and more everyday. The hospital where she was born was very helpful and provided me with a coordinator from the Cleft program who told me all that I needed to know at the time. I have found a plastic surgeon affiliated with that group/program and have also spoken to a parent whose son has had surgery by him. It is very comforting to speak to someone about it in detail. My daughter, Layla, is also so beautiful like your daughter is and I too love her with the cleft. I also have 2 older boys and they find her lip cute and funny! She is 3 months old and hopefully it will be just one surgery for her. I want to thank you for your candid information and let you know that your website is truly from the heart. Good luck to you. Hi,

Like you have said, I stumbled on this website by searching pictures for cleft lip. My daughter has a cleft lip, and is having her surgery on May 18. I am getting worried about it more and more everyday. The hospital where she was born was very helpful and provided me with a coordinator from the Cleft program who told me all that I needed to know at the time.

I have found a plastic surgeon affiliated with that group/program and have also spoken to a parent whose son has had surgery by him. It is very comforting to speak to someone about it in detail.

My daughter, Layla, is also so beautiful like your daughter is and I too love her with the cleft. I also have 2 older boys and they find her lip cute and funny!

She is 3 months old and hopefully it will be just one surgery for her. I want to thank you for your candid information and let you know that your website is truly from the heart.

Good luck to you.

]]> By: Matt http://misheru.com/2006/12/the-cleft-6-months-and-counting/comment-page-1/#comment-2350 Matt Sun, 17 Dec 2006 00:23:19 +0000 http://misheru.com/archives/2006/12/12/the-cleft-6-months-and-counting/#comment-2350 Maya looks to cute! Also I like the new look to your site. Maya looks to cute! Also I like the new look to your site.

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